Hawaii State & National Resources
Access Adult Mental Health Division 24 Hour Suicide and Crisis Line
1-800-753-6879
Aloha Independent Living, East Hawaii
1055 Kino`ole Street, Unit 202, Hilo.
808-339-7297
http://www.alohailhawaii.org/
The ARC, Autism Now
Assistance Dogs of Hawaii
http://assistancedogshawaii.org/
Autism Society of Hawaii
Offers periodic community events and sensory friendly films in Hilo
Next film showing Regal Prince Kuhio (Hilo) – April 30th, 2016 – 10:00 am free to first 75 kids
http://www.autismsocietyofhawaii.org/
Autism Speaks
Bilingual Access Line (Interpreters)
808-526-9724
Centers for Disease Control
http://www.cdc.gov/ncbddd/autism/index.html
Center on Social and Emotional Foundations for Early Learning
Community Children's Councils
Hawaii Association for Behavior Analysis
Hawaii Behavioral Health
Hawaii Community Genetics
http://health.hawaii.gov/genetics/hcg/
Hawaii Disabilities Rights Center
http://www.hawaiidisabilityrights.org/
Hawaii Families as Allies
1-866-361-8825
Hawaii State Department of Education
http://www.hawaiipublicschools.org
Hawaii State Department of Health
Hawaii State Department of Health,
Early Intervention Services
Interagency Autism Coordinating Committee (IACC)
Hilopa‘a
Family to Family Health Information Center
Kokua Psychological Services
Behaviorist & Psychologist training and consultation 808-372-7266
Learning Disabilities Association of Hawaii
Lee, Ryan, MD. Pediatric Neurologist
Shriners Hospital, Honolulu. 808-941-4466
Legal Aid Society of Hawaii
www.legalaidhawaii.org
National Institute of Mental Health:
Autism Disorders
http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd/index.shtml
The Parent Line
statewide confidential line for concerns about parenting. 1-800-816-1222
Social Security Child Disability Starter Kit
https://www.ssa.gov/disability/disability_starter_kits_child_eng.htm
Special Olympics Hawaii
http://www.specialolympicshawaii.org/
Special Parent Information Network
Periodic events in Hilo,
30th annual conference April 16th,
offers some neighbor island scholarships
http://spinhawaii.org/tag/autism/
STAR Autism Program
An EBP educational program designed for schools; also offers purchasable items and information for parents.
Surfers Healing
Enriching the lives of people living with autism by exposing them to the unique experience of surfing. Periodic events in Hilo.
http://www.surfershealing.org/
Talk About Curing Autism (TACA)
University of Hawaii,
Center on Disability Studies
1776 University Ave. UA 4-6
Honolulu, HI 96822
Phone: (808) 956-3975
http://www.cds.hawaii.edu/
The Hawaii Autism Project: Hawaii State and National Resources
The state of Hawaii is an isolated group of islands in the Central Pacific. Hawaii is the most isolated population center on the face of the earth. Hawaii is 2,390 miles from California; 3,850 miles from Japan; 4,900 miles from China; and 5,280 miles from the Philippines. The Hawaiian Archipelago consists of over 130 scattered points of land stretching some 1,600 miles in length from the Kure Atoll in the north to the Island of Hawaii in the south. The state of Hawaii consists of eight main islands: Niihau, Kauai, Oahu, Maui, Molokai, Lanai, Kahoolawe and the Big Island of Hawaii. The state capitol and the only big city is Honolulu, located on the island of Oahu.
The Centers for Medicare and Medicaid services contracted with L& M Policy Research to address the increasing demand for for accurate and thorough data on exisisting ASD services, supports, policies, and disparities in all 50 states. The resulting work was published in the Autism Spectrum Disorders (ASD): State of the States of Services and Supports for People with ASD.The report notes the principle site for services for individuals with ASD is through Hawaii state Developmental Disabilities Division (DDD). Apart from DDD, services are delivered in a fragmented manner with the majority of specialty service providers and support services located on Oahu.
Recommended Books & Articles
The Americans with Disabilities Act
ADA: Service Animals
http://www.ada.gov/service_animals_2010.htm
The Autistic Brain: thinking across the spectrum. Grandin, Temple & Panek, R. (2013). Houghton Mifflin Harcourt Publishing Company.
An early start for your child with autism. Rogers, S., Dawson, G., & Vismara L. (2012). The Guilford Press.
Emergence, labeled autistic: a true story.
Grandin, Temple & Scariano, Margaret. (2005) Grand Central Publishing
Evidence-based treatment for children with autism. Granpeesheh, D., Tarbox, J., Najdowski, A.C., Kornack, J. (2014) The CARD model: Academic Press.
Individuals with Disabilities Education Act (IDEA) for Children with Special Needs provided by Center for Parent Information & Resources
http://www.parentcenterhub.org/repository/idea/
Look me in the Eye: my life with Asperger's. (2008). John Elder Robison.
Three Rivers Press.
The Loving Push: How Parents and Professionals Can Help Spectrum Kids Become Successful Adults. (2016)
Debra Moore Ph.D., Future Horizons
My Way My Choice
Home and Community Based services for individuals with developmental and intellectual disabilities
http://medicaid.dhs.state.hi.us
Information pdf
http://health.hawaii.gov/ddd/files/2014/11/Stakeholder-Presentation_1-12-16-Final.pdf
NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. (2015) Steve Silberman, Avery
Ninth Circuit Court of Appeals Rules That Schools Can’t Pass-the-Buck. Hawaii Free Press. http://www.hawaiifreepress.com/ArticlesMain/tabid/56/ID/9910/Ninth-Circuit-Court-of-Appeals-Rules-Hawaii-Schools-Canrsquot-Pass-the-Buck.aspx
Overcoming Autism: finding the answers, strategies, and hope that can transform a child's life. (2004). Koegel, L.K. & LeZebnik, C. Penquin Group, Inc.
Parent's Notice of Procedural Safeguards Notice, multiple language versions available.
http://www.doe.mass.edu/sped/prb/
The Reason I Jump: the inner voice of a 13yr old boy with autism. Higashida, Naoki (2007) Translation copyright Yoshida, KA & Mitchell, David (2013). Random House Inc.
Social‐Emotional Development/Child Guidance (PDF) with learning and guidance resource links
http://fpg.unc.edu/sites/fpg.unc.edu/files/resources/other-resources/SCRIPT-NC_EDU-146_Social-Emotional_Development_Child_Guidance.pdf
Socially savvy: An assessment and curriculum guide for young children. Ellis, J., & Almeida, C. (2015). : DRL Books.
Switched On: A Memoir of Brain Change and Emotional Awakening. (2016), John Elder Robison. Speigel & Grau.
Teaching social communication to children with autism: A practitioner’s guide to parent training. Ingersoll, B., & Dvortcsak, A. (2010).The Guilford Press.
U.S. Department of Transportation, Air Travelers with Developmental Disabilities Guide. https://www.transportation.gov/sites/dot.gov/files/docs/Developmental_Disabilities_Guide.pdf
Unstuck and On Target! An Executive Function Curriculum to Improve Flexibility for Children with Autism Spectrum Disorders. Cannon, Kenworthy, Alexander, Werner, & Gutermuth Anthony. Research Press. www.researchpress.com/books/1133/unstuck-and-target
Verbal behavior milestones assessment and placement program. Sundberg, M. (2008). AVB Press.
The Verbal behavior approach: How to teach children with autism and related disorders. Barbera, M. L. (2007) Jessica Kingsley Publishers.
Learn about Autism
Let the research help you navigate the ways you choose to support your child. Don’t let the personal stories and experiences of others be the only guide for decisions.
Autism Speaks 100 Day Kit: A document created to help guide families of newly diagnosed children with autism.
autismspeaks.org/family-services/tool-kits/100-day-kit
American Psychiatric Association
https://www.psychiatry.org/patients-families/autism
Association for Science in Autism Treatment (ASAT): An organization that provides information on autism interventions that are strongly supported by research (we know they work!) and addresses those interventions that are not supported by research (not enough research has been conducted yet to say if these work).
Autism Internet Modules http://www.autisminternetmodules.org
Early Signs of ASD Video Tutorial
https://www.youtube.com/watch?v=YtvP5A5OHpU
LEND, Achieva: Autism Webinars
http://www.achieva.info/autism-webinars
My Autism and Me, BBC & CBBC Newsround
https://www.youtube.com/watch?v=ejpWWP1HNGQ
My Experience with Autism (Temple Grandin UCTV)
https://www.youtube.com/watch?v=2wt1IY3ffoU
National Professional Development Center on ASDs (NPDC): A project funded by the Office of Special Education Programs in the US to identify and provide information on evidence-based (research has shown they work!) practices for individuals with autism.
http://autismpdc.fpg.unc.edu/
Rosie King: How autism freed me to be myself
(TED Talk video)
https://www.youtube.com/watch?v=jQ95xlZeHo8
Temple Grandin: The world needs all kinds of minds (TED talk video)
https://www.youtube.com/watch?v=fn_9f5x0f1Q
Town Square: Autism
Hawaii Public Radio audio program
http://hpr2.org/post/town-square-autism
UC Davis: ADEPT Modules
(Autism Distance Education Parent Training)
http://www.ucdmc.ucdavis.edu/mindinstitute/centers/cedd/cedd_adept.html
VCU Autism Center for Excellence
Online Training and Education
https://vcuautismcenter.org/te/family.cfm
Wendy Chung: Autism — what we know (and what we don't know yet) TED talk video
https://www.youtube.com/watch?v=wKlMcLTqRLs
Learn about Behavioral Training
Applied behavior analysis (ABA) is a science that systematically applies procedures to teach skills that are socially significant and meaningful in a person’s life. The use of ABA is an established treatment for autism according to the National Professional Development Center on ASDs and the American Academy of Pediatrics.
Many teachers and providers have probably learned about ABA at some point when they were received training and education on children with autism and other special needs. However, Board Certified Behavior Analysts (BCBAs) have specialized and extensive training and have passed an exam demonstrating they understand and can apply the principles of ABA.
Contact Hawaii Behavioral Health and/or
Hawaii Association for Behavioral Analysis or your Healthcare insurance provider for a referral to a Board Certified Behavior Analyst.
The Institute for Behavioral Training
Offers over 40 hours of training modules for parents and caregivers of person's with autism, small fees associated with each module
http://www.ibehavioraltraining.com/IBT/Parents-Elearning.aspx