Hawaii State & National Resources

Access Adult Mental Health Division 24 Hour Suicide and Crisis Line

1-800-753-6879


Aloha Independent Living, East Hawaii

1055 Kino`ole Street, Unit 202, Hilo.
808-339-7297

​​http://www.alohailhawaii.org/


The ARC, Autism Now

http://autismnow.org/


Assistance Dogs of Hawaii

http://assistancedogshawaii.org/


Autism Society of Hawaii

Offers periodic community events and sensory friendly films in Hilo

Next film showing Regal Prince Kuhio (Hilo) – April 30th, 2016 – 10:00 am free to first 75 kids

http://www.autismsocietyofhawaii.org/


Autism Speaks

 www.autismspeaks.org 


Bilingual Access Line (Interpreters)
808-526-9724

Centers for Disease Control 

http://www.cdc.gov/ncbddd/autism/index.html


Center on Social and Emotional Foundations for Early Learning

 http://csefel.vanderbilt.edu/

Community Children's Councils

www.ccco.k12.hi.us


Hawaii Association for Behavior Analysis   

www.hawaiiaba.org


Hawaii Behavioral Health

http://www.hibh.org


Hawaii Community Genetics

http://health.hawaii.gov/genetics/hcg/


Hawaii Disabilities Rights Center

http://www.hawaiidisabilityrights.org/

Hawaii Families as Allies

1-866-361-8825


Hawaii State Department of Education

http://www.hawaiipublicschools.org


Hawaii State Department of Health

http://health.hawaii.gov/


Hawaii State Department of Health,

Early Intervention Services

http://health.hawaii.gov/eis


Interagency Autism Coordinating Committee (IACC) 

https://iacc.hhs.gov/


Help your Keiki

http://helpyourkeiki.com/


Hilopa‘a

Family to Family Health Information Center​

http://www.hilopaa.org


Kokua Psychological Services

Behaviorist & Psychologist training and  consultation    808-372-7266


Learning Disabilities Association of Hawaii

www.ldahawaii.org


Lee, Ryan, MD. Pediatric Neurologist

Shriners Hospital, Honolulu.  808-941-4466

www.shrinershonolulu.org


Legal Aid Society of Hawaii
www.legalaidhawaii.org


National Institute of Mental Health:

Autism Disorders

http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd/index.shtml


The Parent Line

statewide confidential line for concerns about parenting. 1-800-816-1222

 www.theparentline.org


Social Security Child Disability Starter Kit

https://www.ssa.gov/disability/disability_starter_kits_child_eng.htm


Special Olympics Hawaii

http://www.specialolympicshawaii.org/


Special Parent Information Network

Periodic events in Hilo,

30th annual conference April 16th,

offers some neighbor island scholarships

http://spinhawaii.org/tag/autism/


STAR Autism Program

An EBP educational program designed for schools; also offers purchasable items and information for parents.

http://starautismsupport.com


Surfers Healing

Enriching the lives of people living with autism by exposing them to the unique experience of surfing. Periodic events in Hilo. 

http://www.surfershealing.org/


Talk About Curing Autism (TACA)

http://www.tacanow.org/


University of Hawaii,

     Center on Disability Studies
1776 University Ave. UA 4-6
Honolulu, HI 96822
Phone: (808) 956-3975
 http://www.cds.hawaii.edu/


       The Hawaii Autism Project:  Hawaii State and National Resources


    Kianna's List​​                  Kiannaslist.com

The state of Hawaii is an isolated group of islands in the Central Pacific. Hawaii is the most isolated population center on the face of the earth. Hawaii is 2,390 miles from California; 3,850 miles from Japan; 4,900 miles from China; and 5,280 miles from the Philippines.  The Hawaiian Archipelago consists of over 130 scattered points of land stretching some 1,600 miles in length from the Kure Atoll in the north to the Island of Hawaii in the south. The state of Hawaii consists of eight main islands: Niihau, Kauai, Oahu, Maui, Molokai, Lanai, Kahoolawe and the Big Island of Hawaii. The state capitol and the only big city is Honolulu, located on the island of Oahu. 

The Centers for Medicare and Medicaid services contracted with L& M Policy Research to address the increasing demand for for accurate and thorough data on exisisting ASD services, supports, policies, and disparities in all 50 states. The resulting work was published in the Autism Spectrum Disorders (ASD): State of the States of Services and Supports for People with ASD.The report notes the principle site for services for individuals with ASD is through Hawaii state Developmental Disabilities Division (DDD). Apart from DDD, services are delivered in a fragmented manner with the majority of specialty service providers and support services located on Oahu.

Recommended Books & Articles

 

The Americans with Disabilities Act

http://www.ada.gov/


ADA: Service Animals

http://www.ada.gov/service_animals_2010.htm


The Autistic Brain: thinking across the spectrum. Grandin, Temple & Panek, R. (2013). Houghton Mifflin Harcourt Publishing Company. 

An early start for your child with autism.  Rogers, S., Dawson, G., & Vismara L. (2012). The Guilford Press.


Emergence, labeled autistic: a true story.

Grandin, Temple & Scariano, Margaret. (2005) Grand Central Publishing


Evidence-based treatment for children with autism. Granpeesheh, D., Tarbox, J., Najdowski, A.C., Kornack, J. (2014) The CARD model: Academic Press.


Individuals with Disabilities Education Act (IDEA) for Children with Special Needs provided by Center for Parent Information & Resources

http://www.parentcenterhub.org/repository/idea/


Look me in the Eye: my life with Asperger's.  (2008). John Elder Robison. 

Three Rivers Press. 


The Loving Push: How Parents and Professionals Can Help Spectrum Kids Become Successful Adults. (2016)
Debra Moore Ph.D., Future Horizons


My Way My Choice

Home and Community Based services for individuals with developmental and intellectual disabilities

http://medicaid.dhs.state.hi.us

Information pdf

http://health.hawaii.gov/ddd/files/2014/11/Stakeholder-Presentation_1-12-16-Final.pdf


NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. (2015) Steve Silberman, Avery

Ninth Circuit Court of Appeals Rules That Schools Can’t Pass-the-Buck. Hawaii Free Press.   http://www.hawaiifreepress.com/ArticlesMain/tabid/56/ID/9910/Ninth-Circuit-Court-of-Appeals-Rules-Hawaii-Schools-Canrsquot-Pass-the-Buck.aspx


Overcoming Autism: finding the answers, strategies, and hope that can transform a child's life. (2004). Koegel, L.K. & LeZebnik, C. Penquin Group, Inc. 


​Parent's Notice of Procedural Safeguards Notice, multiple language versions available.

http://www.doe.mass.edu/sped/prb/


The Reason I Jump: the inner voice of a 13yr old boy with autism. Higashida, Naoki (2007) Translation copyright Yoshida, KA & Mitchell, David (2013). Random House Inc. 


Social‐Emotional Development/Child Guidance (PDF)  with learning and guidance resource links
http://fpg.unc.edu/sites/fpg.unc.edu/files/resources/other-resources/SCRIPT-NC_EDU-146_Social-Emotional_Development_Child_Guidance.pdf


Socially savvy: An assessment and curriculum guide for young childrenEllis, J., & Almeida, C. (2015). : DRL Books.

Switched On: A Memoir of Brain Change and Emotional Awakening. (2016), John Elder Robison. Speigel & Grau. 


Teaching social communication to children with autism: A practitioner’s guide to parent training. Ingersoll, B., & Dvortcsak, A. (2010).The Guilford Press.

 

U.S. Department of Transportation, Air Travelers with Developmental Disabilities Guide. https://www.transportation.gov/sites/dot.gov/files/docs/Developmental_Disabilities_Guide.pdf


​Unstuck and On Target! An Executive Function Curriculum to Improve Flexibility for Children with Autism Spectrum Disorders.  Cannon, Kenworthy, Alexander, Werner, & Gutermuth Anthony. Research Press. www.researchpress.com/books/1133/unstuck-and-target


Verbal behavior milestones assessment and placement program. Sundberg, M. (2008). AVB Press.


The Verbal behavior approach: How to teach children with autism and related disorders. Barbera, M. L. (2007) Jessica Kingsley Publishers.



Learn about Autism

Let the research help you navigate the ways you choose to support your child. Don’t let the personal stories and experiences of others be the only guide for decisions. 


Autism Speaks 100 Day Kit: A document created to help guide families of newly diagnosed children with autism.  
autismspeaks.org/family-services/tool-kits/100-day-kit


American Psychiatric Association

https://www.psychiatry.org/patients-families/autism

​​
Association for Science in Autism Treatment (ASAT): An organization that provides information on autism interventions that are strongly supported by research (we know they work!) and addresses those interventions that are not supported by research (not enough research has been conducted yet to say if these work). 

http://www.asatonline.org/


Autism Internet Modules
    http://www.autisminternetmodules.org


Early Signs of ASD Video Tutorial

https://www.youtube.com/watch?v=YtvP5A5OHpU


LEND,  Achieva: Autism Webinars

http://www.achieva.info/autism-webinars


My Autism and Me, BBC & CBBC Newsround

​​https://www.youtube.com/watch?v=ejpWWP1HNGQ


My Experience with Autism (Temple Grandin UCTV)

https://www.youtube.com/watch?v=2wt1IY3ffoU


National Professional Development Center on ASDs (NPDC): A project funded by the Office of Special Education Programs in the US to identify and provide information on evidence-based (research has shown they work!) practices for individuals with autism. 

http://autismpdc.fpg.unc.edu/


Rosie King: How autism freed me to be myself

​(TED Talk video)

https://www.youtube.com/watch?v=jQ95xlZeHo8

 

Temple Grandin: The world needs all kinds of minds (TED talk video)

https://www.youtube.com/watch?v=fn_9f5x0f1Q


Town Square: Autism

Hawaii Public Radio audio program

http://hpr2.org/post/town-square-autism


UC Davis: ADEPT Modules

(Autism Distance Education Parent Training) 

http://www.ucdmc.ucdavis.edu/mindinstitute/centers/cedd/cedd_adept.html


VCU Autism Center for Excellence

Online Training and Education

https://vcuautismcenter.org/te/family.cfm 


Wendy Chung: Autism — what we know (and what we don't know yet)  TED talk video

https://www.youtube.com/watch?v=wKlMcLTqRLs



Learn about Behavioral Training

Applied behavior analysis (ABA) is a science that systematically applies procedures to teach skills that are socially significant and meaningful in a person’s life. The use of ABA is an established treatment for autism according to the National Professional Development Center on ASDs and the American Academy of Pediatrics. 

Many teachers and providers have probably learned about ABA at some point when they were received training and education on children with autism and other special needs. However, Board Certified Behavior Analysts (BCBAs) have specialized and extensive training and have passed an exam demonstrating they understand and can apply the principles of ABA. 


Contact Hawaii Behavioral Health and/or 

Hawaii Association for Behavioral Analysis or your Healthcare insurance provider for a referral to a Board Certified Behavior Analyst. 


​The Institute for Behavioral Training

Offers over 40 hours of training modules for parents and caregivers of person's with autism, small fees associated with each module

http://www.ibehavioraltraining.com/IBT/Parents-Elearning.aspx