Hawaii State & National Resources

The state of Hawaii is an isolated group of islands in the Central Pacific. Hawaii is the most isolated population center on the face of the earth. Hawaii is 2,390 miles from California; 3,850 miles from Japan; 4,900 miles from China; and 5,280 miles from the Philippines. The Hawaiian Archipelago consists of over 130 scattered points of land stretching some 1,600 miles in length from the Kure Atoll in the north to the Island of Hawaii in the south. The state of Hawaii consists of eight main islands: Niihau, Kauai, Oahu, Maui, Molokai, Lanai, Kahoolawe and the Big Island of Hawaii. The state capitol and the only big city is Honolulu, located on the island of Oahu.

The Centers for Medicare and Medicaid services contracted with L& M Policy Research to address the increasing demand for for accurate and thorough data on exisisting ASD services, supports, policies, and disparities in all 50 states. The resulting work was published in the Autism Spectrum Disorders (ASD): State of the States of Services and Supports for People with ASD.The report notes the principle site for services for individuals with ASD is through Hawaii state Developmental Disabilities Division (DDD). Apart from DDD, services are delivered in a fragmented manner with the majority of specialty service providers and support services located on Oahu.

Recommended Books & Articles

The Americans with Disabilities Act

http://www.ada.gov/

ADA: Service Animals

http://www.ada.gov/service_animals_2010.htm

The Autistic Brain: thinking across the spectrum. Grandin, Temple & Panek, R. (2013). Houghton Mifflin Harcourt Publishing Company.

An early start for your child with autism. Rogers, S., Dawson, G., & Vismara L. (2012). The Guilford Press.

Emergence, labeled autistic: a true story.

Grandin, Temple & Scariano, Margaret. (2005) Grand Central Publishing

Evidence-based treatment for children with autism. Granpeesheh, D., Tarbox, J., Najdowski, A.C., Kornack, J. (2014) The CARD model: Academic Press.

Individuals with Disabilities Education Act (IDEA) for Children with Special Needs provided by Center for Parent Information & Resources

http://www.parentcenterhub.org/repository/idea/

Look me in the Eye: my life with Asperger's. (2008). John Elder Robison.

Three Rivers Press.

The Loving Push: How Parents and Professionals Can Help Spectrum Kids Become Successful Adults. (2016)
Debra Moore Ph.D., Future Horizons

My Way My Choice

Home and Community Based services for individuals with developmental and intellectual disabilities

http://medicaid.dhs.state.hi.us

Information pdf

http://health.hawaii.gov/ddd/files/2014/11/Stakeholder-Presentation_1-12-16-Final.pdf

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. (2015) Steve Silberman, Avery

Ninth Circuit Court of Appeals Rules That Schools Can’t Pass-the-Buck. Hawaii Free Press. http://www.hawaiifreepress.com/ArticlesMain/tabid/56/ID/9910/Ninth-Circuit-Court-of-Appeals-Rules-Hawaii-Schools-Canrsquot-Pass-the-Buck.aspx

Overcoming Autism: finding the answers, strategies, and hope that can transform a child's life. (2004). Koegel, L.K. & LeZebnik, C. Penquin Group, Inc.

Parent's Notice of Procedural Safeguards Notice, multiple language versions available.

http://www.doe.mass.edu/sped/prb/

The Reason I Jump: the inner voice of a 13yr old boy with autism. Higashida, Naoki (2007) Translation copyright Yoshida, KA & Mitchell, David (2013). Random House Inc.

Social‐Emotional Development/Child Guidance (PDF) with learning and guidance resource links
http://fpg.unc.edu/sites/fpg.unc.edu/files/resources/other-resources/SCRIPT-NC_EDU-146_Social-Emotional_Development_Child_Guidance.pdf

Socially savvy: An assessment and curriculum guide for young children. Ellis, J., & Almeida, C. (2015). : DRL Books.

Switched On: A Memoir of Brain Change and Emotional Awakening. (2016), John Elder Robison. Speigel & Grau.

Teaching social communication to children with autism: A practitioner’s guide to parent training. Ingersoll, B., & Dvortcsak, A. (2010).The Guilford Press.

U.S. Department of Transportation, Air Travelers with Developmental Disabilities Guide. https://www.transportation.gov/sites/dot.gov/files/docs/Developmental_Disabilities_Guide.pdf

Unstuck and On Target! An Executive Function Curriculum to Improve Flexibility for Children with Autism Spectrum Disorders. Cannon, Kenworthy, Alexander, Werner, & Gutermuth Anthony. Research Press. www.researchpress.com/books/1133/unstuck-and-target

Verbal behavior milestones assessment and placement program. Sundberg, M. (2008). AVB Press.

The Verbal behavior approach: How to teach children with autism and related disorders. Barbera, M. L. (2007) Jessica Kingsley Publishers.

Learn about Autism

Let the research help you navigate the ways you choose to support your child. Don’t let the personal stories and experiences of others be the only guide for decisions.

Autism Speaks 100 Day Kit: A document created to help guide families of newly diagnosed children with autism.
autismspeaks.org/family-services/tool-kits/100-day-kit

American Psychiatric Association

https://www.psychiatry.org/patients-families/autism

Association for Science in Autism Treatment (ASAT): An organization that provides information on autism interventions that are strongly supported by research (we know they work!) and addresses those interventions that are not supported by research (not enough research has been conducted yet to say if these work).

http://www.asatonline.org/

Autism Internet Modules http://www.autisminternetmodules.org

Early Signs of ASD Video Tutorial

https://www.youtube.com/watch?v=YtvP5A5OHpU

LEND, Achieva: Autism Webinars

http://www.achieva.info/autism-webinars

My Autism and Me, BBC & CBBC Newsround

https://www.youtube.com/watch?v=ejpWWP1HNGQ

My Experience with Autism (Temple Grandin UCTV)

https://www.youtube.com/watch?v=2wt1IY3ffoU

National Professional Development Center on ASDs (NPDC): A project funded by the Office of Special Education Programs in the US to identify and provide information on evidence-based (research has shown they work!) practices for individuals with autism.

http://autismpdc.fpg.unc.edu/

Rosie King: How autism freed me to be myself

(TED Talk video)

https://www.youtube.com/watch?v=jQ95xlZeHo8

Temple Grandin: The world needs all kinds of minds (TED talk video)

https://www.youtube.com/watch?v=fn_9f5x0f1Q

Town Square: Autism

Hawaii Public Radio audio program

http://hpr2.org/post/town-square-autism

UC Davis: ADEPT Modules

(Autism Distance Education Parent Training)

http://www.ucdmc.ucdavis.edu/mindinstitute/centers/cedd/cedd_adept.html

VCU Autism Center for Excellence

Online Training and Education

https://vcuautismcenter.org/te/family.cfm

Wendy Chung: Autism — what we know (and what we don't know yet) TED talk video

https://www.youtube.com/watch?v=wKlMcLTqRLs

Learn about Behavioral Training

Applied behavior analysis (ABA) is a science that systematically applies procedures to teach skills that are socially significant and meaningful in a person’s life. The use of ABA is an established treatment for autism according to the National Professional Development Center on ASDs and the American Academy of Pediatrics.

Many teachers and providers have probably learned about ABA at some point when they were received training and education on children with autism and other special needs. However, Board Certified Behavior Analysts (BCBAs) have specialized and extensive training and have passed an exam demonstrating they understand and can apply the principles of ABA.

Contact Hawaii Behavioral Health and/or

Hawaii Association for Behavioral Analysis or your Healthcare insurance provider for a referral to a Board Certified Behavior Analyst.

The Institute for Behavioral Training

Offers over 40 hours of training modules for parents and caregivers of person's with autism, small fees associated with each module

http://www.ibehavioraltraining.com/IBT/Parents-Elearning.aspx