Community Resources
The Arc of Hilo, Inc.
1099 Waianuenue Avenue, Hilo. 808-935-8535
Pahoa Village Road, Pahoa. 808-965-8464
Adult day programs & personal assistance in home or community
Bayada Home Health Care, Inc.
1221 Kilauea Aveune, Suite 60, Hilo. 808-969-9622
Nursing, respite, personal & behavioral assistance, community integration
Blue Water Resources, LLC.
688 Kinoole Street #101, Hilo. 808-443-5112
Nursing, personal & behavioral assistance, community integration
Brantley Center, Inc.
45-370 Ohelo Street Honoka'a. 808-775-7245
Training activities to promote independent living
CareResource Hawaii, Inc.
69 Railroad Avenue #A20, Hilo. 808-935-2718
Nursing, chores, companionship, respite
Center for Independent Living - East Hawaii
400 Hualani Street, Suite 16D
Hilo. 808-935-3777
Department of Education - Special Education
Hawai‘i District
East Hawaii Regional Office
480 Waianuenue Avenue, Bldg. B, Hilo. 808-974-4535
South Hawaii Regional Office
15-565 Keaau-Pahoa Road, Bldg B, Keaau.
808-982-4242
Department of Health:
Developmental Disabilities Division, www.health.hawaii.gov/ddd
46 Keawe street Hilo. 808-974-4280
Children with Special Health Needs Branch
75 Aupuni Street. Hilo. 808-974-4288
Children and Adolescent Mental Health Division
808-933-0610
Department of Human Services
Medicaid/QUEST Office
East Hawaii, 808-933-0339
http://med-quest.us/
Vocational Rehabilitation Division-East Hawaii
75 Aupuni Street, Room 110, Hilo. 808-974-6444
Easter Seals Hawaii http://hawaii.easterseals.com
49 Kaiulani Street, Hilo. 808-961-3081
Hilo Early Intervention Services
16-204 Melekahiwa Street #3 Keaau.
961-3716 Family centered services
East Hawai‘i Developmental Disabilities Committee
175 Aupuni Street, Suite 105, Hilo
808-933-8843
Full Life, www.FullLifeHawaii.org
120 Keawe Street Hilo. 808-935-7699
Personal Assistance, Adult Day Health and Employment services
Goodwill Industries of Hawaii, Inc.
500 Kalanianaole Avenue, Suite 1, Hilo. 808-961-0307
Skills training, social, vocational, & community opportunities
Hawaii Behavioral Health
234 Waianuenue Ave. #215, Hilo. 808- 935-7949
education, behavioral health, social services
Hope Services Hawaii
Homeless & mental health outreach, housing programs, SNAP outreach, 808-935-3050
Imua Community Services, LLC.
Mountain View. 808-864-2714
Personal assistance, chore and respite services
Hawaii Home Visiting Network
808-961-3877
Intake, screening, home-visits, & early intervention for children up to 36 months
The Institute For Family Enrichment (TIFFE)
(Division of Child and Family Services)
1045 Kilauea Avenue #A, Hilo. 808-961-5166
Personal assistance, respite, employment, training, consultation
Kama'aina Health Services
243 Ululani Street, Hilo. 808-935-6918
Personal assistance, chore, respite, nursing services
Kokua Nurses
58 Kinoole Street #105, Hilo. 808-935-6291
Persoanal assistance, nursing and services
Mastercare, Inc.
120 Pauahi Street #207, Hilo. 808-935-2230
Personal assistance, chore, respite, nursing, training, consultation
Metrocare Hawaii-Plus www.mch2001.com
327 Kinoole Street, Hilo. 808-934-8334
Personal assistance, chore, nursing, transportation
Nurse Pro-Care
315 Kinoole Street, Hilo. 808-933-9933
Personal assistance, chore, respite, nursing services
Partners in Development Foundation
Tutu and me traveling preschool 808-982-4102
P.A.R.E.N.T.S.
parent education groups, 808-934-9552
Public Health Nursing
East Hawaii 808-974-6025
Child health guidance, immunizations, developmental screening, referrals, health education & prevention.
Puna Kamali`i Flowers, Inc. www.punakamaliiflowers.com
dab Employment Network Hawaii
16-211 Kalara Street, Keaau.
808-930-6200 or 982-8322
Adult day health, personal assistance, employment training, peer socialization, community recreational events
Queen Liliu'okalani Children's Center
Services for Hawaiian orphans or destitute children
919 Ululani Street, Hilo. 808-935-9381
Salvation Army Family Intervention Services
Community outreach, intervention, crisis counseling, and residential services. 808-959-5855
Sharing Kuleana, Village Support Group
Special Needs Family Support Group
Contact Eloisa or Damon at SharingKuleana@gmail.com
Retrieved from google images
ASD Diagnostic Providers
Stephanie Dodge PhD
56 Waianuenue Ave. Ste. 213, Hilo
(808) 747-3445
Licensed Psychologist
www.stephaniedodgephd.com
Autism diagnosis, family counseling
Sylvia Ross, PhD
(808) 938-2260 or drsylviaross@gmail.com
Licensed Psychologist in Captain Cook.
808-938- 2260, drsylviaross@gmail.com
She specializes in neuropsychological assessment
and evaluation of children and adults with developmental delays, intellectual disabilities, and autism diagnosis.
Hawaii Act 235, Luke's Law
On January 1, 2016, Hawaii launched a new autism insurance mandate. The law applies to individual
and group insurance plans issued or renewed after January 1, 2016. Coverage for autism services is limited to children under the age of 14 and applied behavioral analysis (ABA) is capped at $25,000 per year. Treatment for autism requires a treatment plan that the insurer can review for medical necessity at their discretion
http://www.capitol.hawaii.gov/session2015/bills/SB791_CD1_.pdf
Established Interventions for children, adolescents, and young adults
Identified in the National Standards Report
Refer to the link on the Resource Page:
Evidence-based Knowledge & Practice
Behavioral Interventions
Cognitive Behavioral Intervention Package
Comprehensive Behavioral Treatment for Young Children
Language Training (Production)
Modeling
Natural Teaching Strategies
Parent Training
Peer Training Package
Pivotal Response Training
Schedules
Scripting
Self-Management
Social Skills Package
Story-based Intervention
East Hawaii is a rural area on Hawaii Island. The southern most and largest island in the Hawaiian chain.
Early intervention services have long been considered key to communication and behavioral improvements in children with autism disorders. Children who live in rural environments experience numerous challenges to acquiring early interventions including a lack of providers prepared to work with children with ASD, large commute times, and increased costs to reach provider locations.
A comprehensive assessment of community agencies that provide services for ASD in East Hawaii was carried out to determine services they provide and to identify other providers of services within East Hawaii.
The results of the community assessment of resources are noted below with web-links provided when available.
Newly Diagnosed with Autism?
Here are some recommendations that can guide you and your family as you make decisions:
Take time to process what was discussed at the evaluation.
Review over the evaluation report.
Make a list of questions related to what this diagnosis means for your child. It’s OK if you do not remember what was said during the evaluation. This day can be overwhelming.
If you have professionals (care coordinator, teacher, etc.) that have helped to support you through this process ask them to review the evaluation process and report with you.
Ask the diagnosing psychologist or healthcare provider to respond to any questions you may have about the evaluation.
Identify supports that can help your child and your family access meaningful, life-changing interventions.
After Diagnosis - What now?
Contact the Department of Education and the pubic school that your child will or does attend. Request comprehensive assessments of I.Q., fine and gross motor, social, speech and any other assessments areas of concern.
When the assessments are complete you will be able to schedule and create an Individualized Education Plan (IEP) for the child to address all areas of concern as noted in the assessments. Request copies of all assessments.
Make an appointment with an intake specialist at the Department of Health Developmental Disabilities Division . Bring all your assessments and diagnostic reports.
Apply for SSI disability, see a link on the State resources pages.
The Developmental Disabilities Division coordinates Home and Community Based Services through multiple agencies. If the child has a confirmed disability as noted in the assessments and receives compensation from SSI, they may be eligible forHawaii's Fee-for-Service Medicaid insurance and no-cost or partial-cost intervention services.
Please note that this is a long process and may take many months. Contact SSI & the DOH, DDD as soon as your assessments are completed.
Contact your health insurance provider and find out what services they offer. Hawaii Act 235 - Luke's Law now requires health insurers to provide autism services and ABA for children under age 14.
AlohaCare 800-434-1002
www.alohacare.org
HMSA 800-440-0640
www.hmsa.com
Kaiser Permanente 808-432-5777
www.kpquest.org
‘Ohana Health Plan 888-846-4262
www.ohanahealthplan.com
UnitedHealthcare Community Plan
888-980-8728
www.uhccommunityplan.com
Start a file for all your assessments and paperwork. Keep it in chronological order. You may find a particular item may be useful documentation in the future; and you will be able to look back and see the progress your child has made.
Learn about Autism
Refer to the State and National Resource page for information about autism.
Learn about ABA
(Applied Behavioral Analysis)
Refer to the State and National Resource page for information about ABA.
Autism Spectrum Disorders (ASD) are a group of developmental brain disorders with a wide range of individual symptoms from mild to severely disabling. The term spectrum is used to explain the variable manifestations.
The key defining characteristics include impaired social communication/interaction and restricted/repetitive behaviors as noted in the two main overlapping circles above.
Other common conditions associated with ASD are noted in the small surrounding circles.
Treatment, services, and interventions for ASD are focused on the unique symptoms and needs of the individual and promoting life skills.
Developmental Disability/Intellectual Disability (DD/ID) 1915 (c) HCBS Waiver
Under the provision of Title 42, Section 441.304(f)(1) of the Code of Federal Regulations, the State of Hawaii, Department of Human Services and Department of Health (the State), hereby notifies the public that it intends to request from the Centers for Medicare & Medicaid Services, a five (5) year renewal of the Home and Community Based Services (HCBS) Waiver authorized in Section 1915(c) of the Social Security Act, which is set to expire on June 30, 2016. This renewal will be effective July 1, 2016.
The program under the 1915(c) HCBS Waiver permits the State to furnish an array of home and community based services that assist Medicaid beneficiaries to live in the community and avoid institutionalization. This program enables a person with developmental disabilities or intellectual disabilities who meets institutional level of care, the choice to live in their own home or in the community with appropriate and quality supports designed to promote health, safety and independence.
The Hawaii Autism Project: East Hawaii Community Resources
Revised Memorandum that describes Coverage of Intensive Behavioral Therapy (IBT)
On August 28, 2015,
the Department of Human Services, Med-QUEST Division (MQD) issued a revised memorandum that provides guidance regarding coverage of
intensive behavioral therapy (IBT)
that includes
Applied Behavior Analysis (ABA)
for the treatment of autism spectrum disorder (ASD).
Click here for a copy of the revised memorandum.
http://med-quest.us/PDFs/Provider%20Memos/QI-1515_FFS-1510.pdf